Little baby Sebastian was born September 12th, 2013. Moments after his birth the doctors diagnosed him with a congenital heart defect known as Tetra of Fallot. Because of low oxygen levels, the day after he was born, he underwent two emergency open heart bypass surgeries. His oxygen levels are higher and thanks to God's Graces, he survived and is recovering from the surgeries. He still needs corrective heart surgery in the next three months so he can live, and have a health normal childhood.
Monday, 25 November 2013
Saturday, 16 November 2013
2 Months and Still Fighting.
Little Sebastian getting his check ups, nothing gets past this guy he is alway so aware of whats going on! |
Two months ago baby Sebastian blessed us by coming into this
world. Although he would enter this world under difficult circumstances, his
fight has been heard around the globe as a testimony to life.
Sebastian reached two months old, he is one tough little
guy. This past month we have watched him get stronger, eat more and start to
put on weight. He has had numerous doctors visits, all going quite well. They
say his little heart’s pulmonary artery is growing well, which puts him in good
shape for the corrective surgery. Overall they say in the scope of conditions
as serious as Tetralogy of fallot, Sebastian has “Good anatomy” among the cases
they have seen. We are thrilled they are saying this, as this means after the
corrective procedure his prognosis is positive.
Sebastian is such a special little baby, he is very keen,
rehabilitation has shown no signs of any brain damage, despite his early on low
oxygen levels and his near death episode
during his second surgery. He continues
to amaze us with his sweet happy personality. He laughs and smiles a lot now
and even tries to communicate in his baby language.
Sebastian did the most amazing thing the other day, at only
6 weeks old, we were feeding him and he put both hands on the bottle picked it
up and started feeding himself. This is so encouraging for us as it shows his
brain is developing good motor skills, which is always a concern when
babies have gone through low oxygenation levels as Sebastian has.
Sebastian with his favorite animal Mr. Monkey | Sebastian with Alicia "self feeding" holding the bottle on his own! |
We are so very thankful to all of you for your support and
loving care to baby Sebastian as he fights this battle for life. We are getting
closer to the date in which he needs to get his final corrective surgery, and
he still needs your help to get the proper care he needs. If you feel inclined,
please help him by asking your friends to donate so we can reach the goal. We
so greatly appreciate all you have done.
God Bless you and your families.
Sincerely
Simon, Alicia and Sebastian.
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