The Snuggle of a mother

First Time Alicia has been able to lay side by side with little Sebastian. 

First we want to thank each of you so much for your kindness and support for little baby Sebastian. We are truly grateful and amazed at the sympathy in everyone’s hearts.

Big day, today we are in the hospital for 24 hours to test how Sebastian responds without oxygen support. So-far-so-good. Also it’s kind of cool because at home we have him always in a crib or nursing on the coach, and since we have to have him in a sterile room, he is confined to only his room, so Alicia has never laid next to him.

Like in the photo above the crib in the hospital room is huge, so mother and child are now joined for the first time in a soft side-by-side snuggle. It’s so sweet I love it! 

Sebastian is such a warrior his oxygenation level so far is great, without oxygen support he seams to be doing fine. If the oxygenation stays the same throughout the 24hour test it will show that he is getting way stronger after his second surgery. Specifically it would mean his lungs have recovered by the damage he undertook when they had him on the respirator after his second surgery. It also shows that the blood flow hemodynamics are stable, meaning the second surgery outcome has been exceptional. All this is excellent news in preparation for his second surgery.

Alicia’s mother “Grandma” is here, she has been a huge logistic support during the entire journey of little Sebastian. We love you Dona Alicia!.

We are looking into more details of his next surgery and evaluating the best options for his care. We will update everyone on this and details of how the fundraiser supports every aspect of his healthcare.

We send lots of love to all of you

Sincerely

Simon & Alicia.